For Immediate Release
Organizations Announce the Coalition 4 Fibromyalgia,
and a Call To Action for the DSM-5
Coral Gables, FL, June 13, 2011 – NeuroEndocrineImmune Disease (NEIDs) organizations have formed the second phase of the Coalition network to serve their patient community and change public policy. The Coalition 4 Fibromyalgia mission is to present a unified voice with common goals and objectives that will improve the quality of life for fibromyalgia (FM) patients and their families. This professional collaboration will strengthen its member organizations, promote resource-sharing, encourage networking and provide leadership training.
At the same time we are launching this professional coalition, we are also announcing a ""Call To Action" addressing the American Psychiatric Association (APA) -DSM-5 (Diagnostic and Statistical Manual of Mental Disorders (DSM) now currently in its 5th revision, with suggested changes that may profoundly affect Fibromyalgia patients and how this disease is being viewed by physicians. The APA is responsible for issuing DSM-5. This new version- DSM5 - is holding the second round of public review now.. The DSM-5 update could have profound implications for Fibromyalgia patients. Your input is needed before public review is closed on June 15. For more information on this important effort and how you can help, please visit the Coalition 4 Fibromyalgia website.
The Coalition 4 Fibromyalgia will engage and mobilize governmental health agencies, the private bio-medical industry, researchers, health care providers
and the public toward finding a cure for fibromyalgia and related NeuroEndocrineImmune diseases. A multi-organization national strategy will change current practices and bring solutions so that fibromyalgia patients can lead productive and healthy lives.
The Coalition 4 Fibromyalgia is extending an open invitation to other NEIDs patient advocacy 501(c)(3) organizations to join. Research organizations and other businesses that support and/or share a similar vision and mission, or otherwise cater to the needs of Fibromyalgia and other NEIDs communities,
are invited to become associate members.
The following organizations are charter members: Chronic Fatigue Syndrome/ Fibromyalgia Organization of Georgia, Inc., CFS Knowledge Center, CFS Solutions of West Michigan, PANDORA, Inc. (Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research & Advocacy, Inc.), Rocky Mountain CFS/ME & FM Association (RMCFA), and the Wisconsin ME/CFS Association, Inc.
Please visit the coalition 4 Fibromyalgia website or go to the Facebook page for more information on the coalition.
About NeuroEndocrineImmune Diseases (NEIDs):
NeuroEndocrineImmune Disease includes myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), fibromyalgia (FM), chronic Lyme disease (CLD), multiple chemical sensitivities (MCS) and Gulf War illnesses (GWI)
About Coalition 4 Fibromyalgia and the NEIDs Network:
Coalition 4 Fibromyalgia was founded on June 1, 2011 and joins the Coalition 4 ME/CFS in the second phase of the NEIDS network. The coalition mission is to engage and mobilize governmental health agencies, the private bio-medical industry, researchers, health care providers and the public toward finding a cure for Fibromyalgia and related NeuroEndocrineImmune diseases. Our current charter members are Chronic Fatigue Syndrome/ Fibromyalgia Organization of Georgia, Inc., CFS Knowledge Center, CFS Solutions of West Michigan, PANDORA, Inc. (Patient Alliance for NeuroEndocrineImmune Disorders Organization for Research & Advocacy, Inc.), Rocky Mountain CFS/ME & FM Association (RMCFA) and Wisconsin ME/CFS Association, Inc.
News
Coalition 4 ME/CFS Applauds IOM Pain Report
WASHINGTON, DC – June 29, 2011 – “As organizations representing millions of Americans who suffer from chronic pain, of health professionals who care for these Americans, and of researchers and educators working to improve the care and treatment options available to these Americans, we are united in our enthusiasm for the IOM’s attention to this issue and by the release of this landmark report that identifies pain as a major public health problem. See full release
__________________________________________________
